A Mayo Fianna Fail TD has expressed her disappointment that despite the approval of the Spinraza drug last June for children with SMA only three of the 25 waiting have received access to this drug.

Lisa Chambers said when she questioned the Health Minister why there was a delay in rolling out this drug, he responded by saying he wasn’t aware at the time of the announcement that a specialised team would be required.

Deputy Chambers she doesn’t buy this, as for rare drugs and rare diseases you will always need a specialised team to administer the drug.

There will be a more detailed Dail debate on this matter today and the Castlebar based deputy says she will be raising a number of questions with Minister Simon Harris.

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