It's beyond belief that children suffering from SMA - Spinal Muscular Atrophy - are still awaiting treatment, four months after the drug Spinraza was approved in Ireland.

That's according to Mayo Sinn Fein Senator Rose Conway-Walsh, who says the families of two Mayo children  -Grace O'Malley from Hollymount and Cillian Mearns from Shrule - are still waiting for the treatment to be administered, while the HSE is saying it doesn't have to hospital beds or staff needed.

There was widespread welcome last June when Spinraza was approved by the HSE, but Senator Conway-Walsh says it's now imperative that the Minister for Health announces a start date for its administration to the children involved.

She's raising the matter during the Commencement Notices in the Seanad this morning, and is hoping Minister Simon Harris will come into the House to give an update on this issue....

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