The HSE has today approved the drug Spinraza for children with SMA -Spinal Muscular Atrophy.

Following a long campaign to have the drug approved, the HSE has given the green light this afternoon.

Two children from the south Mayo region - Grace O'Malley and Cillian Mearns - are among those suffering with SMA, and the decision to grant funding for the life-changing drug has  received cross-party welcome by local politicians.

 

 

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