A Mayo Senator says it's very disappointing that the Government has not yet decided whether to provide the Spinraza drug for children suffering from SMA - Spinal Muscular Atrophy.

A decision was expected today, but that has now been deferred, according to Sinn Fein Senator Rose Conway-Walsh, who says it's bitterly disappointing for the families of two children in south Mayo with this condition.

The families of Grace O'Malley in Hollymount and Cillian Mearns from Cloghans are left waiting for a decision on this life-changing drug, which is available in 21 other countries in Europe, and Senator Conway-Walsh is urging people to highlight this campaign on the doorsteps ahead of next week's local and European elections....

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